Thursday, December 11, 2014

Insurance Policy

I’ll take the over 95% curable policy, please.

Policy effective 12/3/2014

Item 1: Chemotherapy

First coverage: Cytoxan combined with Adriamycin – 4 treatments, one every 2 weeks.

Incidentals:
  • low white blood cell count
  • increased risk of bleeding from low platelet count
  • hair loss
  • nausea
  • vomiting
  • loss of appetite
  • sores in mouth or on lips
  • nail changes
  • heart problems
  • diarrhea
  • irregular periods/ early menopause

Second coverage: Taxol combined with Herceptin – 12 treatments, one every week.

Incidentals:
  • low white blood cell count
  • susceptibility to infection
  • allergic reactions
  • hair loss
  • numbness in the fingers and toes (neuropathy)
  • weakness
  • vomiting
  • diarrhea
  • mouth sores
  • irregular periods/early menopause
  • weakening of the heart muscle
  • anemia
  • abdominal pain
Total duration – 5 months

Item 2: Radiation – every day starting 4 weeks after chemotherapy.

Duration – 6 weeks

Item 3: Herceptin (antibody IV drug) - 17 treatments, one every 3 weeks.

HER2 (human epidermal receptor 2) inhibitor targeted therapy. HER2 inhibitors work against HER2-positive breast cancers by blocking the ability of the cancer cells to receive chemical signals that tell the cells to grow.

Incidentals:
  • weakening of the heart muscle
  • low white blood cell count
  • diarrhea
  • anemia
  • abdominal pain
Duration – One year

 

Tuesday, December 9, 2014

October 23, 2014

It's been over a month since I received the devastating news. No words could ever begin to describe how it feels. How you feel. How your life comes crashing down around you. I don't want to die. I'm not ready to die. That's what I remember feeling the most and the exact words I cried out in utter despair to my boyfriend, Dan, and my parents when I found out.

I was at work. It was approximately 4 pm on Thursday, October 23, 2014. I wasn't even worried. It's nothing, right? 'Cause see, I had seen a surgeon in March who told me my mastalgia, fancy medical term for breast pain, was nothing. "Are you sure it's growing?" Yes, I'm sure, and yet, I shouldn't worry about it. He was sure it was just fibrocystic related. Sent me on my way with a prescription note pad that said: 1) Drink less/avoid caffeine 2) Limit alcohol 3) Take evening primose oil. So I tried, but the pain didn't stop. I still wasn't worried though. The thought of it being cancer never crossed my mind. Cancer doesn't hurt.

"It doesn't look good. I'm so sorry, sweetie." Those are the words permanently ingrained in my head. The words that sent me to my knees, bawling in the middle of my boss' cubicle. My doctor said I wouldn't remember what she was saying to me, but to make sure I had someone close to me and that they needed to take me home. She was right. All I remember was that it was cancer and that my pathology came back as Grade III. Grade III? What does that even mean? How bad is it? Am I dying? I'm dying aren't I? Just tell me! But they don't. Because they don't really know, but they don't tell you that. They let you agonize and stew over every horrible outcome you could ever possibly imagine, and then 12 hours later you get some answers. Some. I wrote mine on a diner place mat while I was forcing myself to have breakfast with my mom the next morning and pretend my life was normal.

Grade III - aggressive, abnormal cells are growing rapidly. 
Invasive - cancer cells have broken beyond the breast duct.  
Stage? An answer you don't get until surgery. There are several factors that determine staging. Not scary at all, right?

I've been through a lot since October 23. Most of it left my head spinning, my stomach in constant knots, 10 pounds lighter, and stressed beyond belief. It really feels like forever ago though. 

Surgeon consult 
Breast MRI with contrast
Chest, abdomen, pelvic CT
Bone scan 
Genetic counseling 
Sentinel node injection/scan
Lumpectomy and sentinel node dissection surgery
Medical oncology consult
Fertility consult
Thyroid ultrasound
Radiation oncology consult
Echocardiogram
Port placement surgery

Since my diagnosis, it's been fairly good news. As good as anyone could hope for with cancer. My tumor was removed successfully with good margins, meaning the surgeon cut out additional tissue surrounding the tumor and the margin tissue was cancer free. In simpler words, it's all out! During surgery I had 3 lymph nodes removed. They remove them to test them for cancer, too. This is how they know if it's metastasized and could be else where in your body. My lymph nodes? Clean. My tumor at it's longest length was 2 cm. What does this all mean? I am stage 1. Stage 1. It's pretty amazing.  




This is me.


My name is Danielle Lucinda Perryman, 31 years old. I have recited and spelled my name more times than I care to count. That’s what happens when you are diagnosed with aggressive, invasive carcinoma. Aka - Breast Cancer. Every healthcare professional will ask you to say and spell your name. It becomes second nature. Danielle Lucinda Perryman.


D-A-N-I-E-L-L-E  L-U-C-I-N-D-A  P-E-R-R-Y-M-A-N Date of birth: 5/15/83


That’s me, or is it? They should really have it tattooed on your body at birth. It would be just as much proof as me saying and spelling it. It’s not like they check for proof of identification or anything. I could be a homeless chick just trying to get free healthcare. No, that’s not the case. I AM me. I AM Danielle Lucinda Perryman, diagnosed with aggressive, invasive breast cancer. This IS my life. This IS my fight.